Thursday, May 28, 2026

Speaking Up in the Emergency Room

A Lesson in Family-Centered Patient Advocacy

How a hospital handles situations can make a significant difference in a patient’s and family’s experience and care. When I learn lessons that work, I like to share them in the hope that they may help others. Today was one of those experiences—one that may be useful in Family-Centered Patient Advocacy Training.

My father was taken to the hospital by ambulance after a fall. Thankfully, he is now home and doing well, but the nature of his injury required immediate transport. I followed and arrived shortly after he did.

Because my father is elderly, can become confused, and may react unpredictably when frightened, I knew it was important for me to be with him as soon as possible. When I arrived, I signed in at the front desk. The staff member told me she would call back and let me know when I could go in.

I waited for quite some time. Each time I checked in, I was told there was “nothing yet.” Although the staff member was kind, I began to feel that the delay was unnecessary and not acceptable under the circumstances. I called the hospital switchboard, asked for the patient advocate, and left a message explaining that while the staff had been courteous, the policy itself was causing an unhelpful delay in my ability to support my father.

I then returned to the desk and calmly said, “You have been very kind, and I appreciate that. But I want you to know that I left a message for the patient advocate because this policy is not working. I need to be with my father. I am not complaining about you personally—it is the policy that needs to be changed.”

At that point, she took my identification, printed a visitor pass, and arranged for someone to escort me to my father.

Later, I saw her in the patient care area and jokingly commented that she had left her desk. She explained that the main office had instructed her to come into the back of the emergency department to better understand the delays and improve the process.

The lesson from this experience is simple: be kind, be firm, and speak up. Doing so can help you get what your loved one needs—and may even lead to meaningful changes in policies that affect others.

 


Wednesday, January 28, 2026

Was this National Leader Misdiagnosed and it Slipped by Everyone?


When a Misdiagnosis Slips By - No One Learns

Have you heard Lee Zeldin talk about his cancer?  He represented part of eastern Long Island in Congress, serving on Foreign Affairs and Financial Services Committees. Now he leads the country’s Environmental Protection Agency (EPA).

His post on X in December 2025 explained that he had a basal cell carcinoma but that it was removed, and he is fine.[1] Then he goes on to write: “Encourage your friends and family to wear sunscreen and see a dermatologist regularly. Early detection matters.”

What he didn’t tell you in his post but mentioned in a News 12 Long Island interview is that he first went to one doctor who told him to come back if it got worse. Years later he went for a check up with another doctor, who immediately recognized that this was a form of cancer which needed to be removed. 

The first doctor’s conclusion? That was a misdiagnosis!

This is not meant to blame the doctor who misdiagnosed him, and I’m not making light of his suggestion to wear sunscreen.  What I am bringing to your attention is how easily a misdiagnosis slips under the radar as if it is not an important part of the story. 

Too often, when the patient survives, we lose sight of the patient safety and advocacy lessons in the story.  Did you miss that point?  How common is misdiagnosis? In the US in 2025, just over 600,000[2] people died from all forms of cancer, while almost 800,000 were harmed or died due to misdiagnosis.[3]

Learn more about misdiagnosis at the Pulse Center for Patient Safety website. One is a Number reminds us that we are each a number and we each matter.