Thursday, August 14, 2008

The Joint Commission Survey

After years of patient safety education the highlight of my work is being able to attend a Joint Commission survey. It helps patient safety come full circle while my focus stays on the patient outcomes but I can see things through the hospital policies and procedures.

As a Commissioner on the Joint Commission (also called a board member) I am one of 7 “public members”. I am not there as a representative of a healthcare organization such as the American Medical Association, American College of Surgeons or any one of the other prestigious groups who make up the governing body of the JC as it has been called since the change in name in 2008. As a public member, I am there as a patient, potential patient, family member of a patient or someone from the public with an interest and some knowledge (and passion helps) in patient safety.

To participate in surveys, commissioners observe the process so we can participate somewhat intelligently on the decisions being made at the board level. It also helps being a member of the Accreditation Committee. The Accreditation Committee is where discussions happen following a survey when there are outcomes that need addressing.

Each team of surveyors has someone in charge of the group. This is the Team Leader and basically set the tone, and run the survey. The team consists, usually, of a nurse, doctor an administrator and / or a life safety code specialist. The life safety code specialist specializes on the environment of care. This includes fire safety, engineering, electronics and much more as it pertains to the buildings safety.

The survey begins with a meeting in the lobby of the hospital before 8:00 AM. By this time, the facility staff had less than an hour to know of the team’s arrival. They are informed, by way of the internet that the surveyors will be there. They are given the teams names and some background on the website. At this point, either the organization is ready, or not. There is no planning that can happen now.

Generally greeted warmly, there is a sense of discomfort in the air as now these unannounced guests will be taking over offices, go through files and interview already overworked staff. Sometimes people get called in from vacation and soon all leadership begins to envelope the surrounding rooms ready to answer questions, assist in tours and retrieve files and books of information.

The courtesy shown by the surveyors are a clear example of their own knowledge of being on the receiving end of a Joint Commission survey. They too work in hospitals and have an understanding of the process from both sides.

As the surveyors get settled in, introduce themselves to each other, share some small talk about the facility and their past experience, the hospital staff is preparing in another room a meeting with all the department heads and senior level staff.

By 9:00 AM everyone is crowding into a large conference room. There can be as many as 15 – 20 senior leadership depending on the size of the facility. The team leader begins the introductions.

Once the group has shared pleasantries, the team leader will discuss why they are there and what they expect to see. The organization staff will give a history and overview of the facility. This will include their size, staff, accomplishments and the neighborhood they serve. The team will now go back to continue reading by-laws, hospital policies and reviewing the organizations books and information related to quality. The administrative staff will stay available on the other side of the closed doors in case the surveyors have questions and they will be available to retrieve additional information.

The team discusses their plans amongst each other which usually consist of reviewing more information such as credentialing, policies and procedures or doing tracers. A tracer is reviewing the list of all hospitalized patients including their age, length of stay and diagnosis and picking a patient out to trace from the moment they arrived at the facility to the present.

During the tracer, the surveyor will be looking to see if standards are met such as writing the medication appropriately, checking the patients vitals and patient teaching. While in the building, the surveyors will note if they see medical staff wash their hands, wear name tags and practice proper patient identifiers such as asking the patients name, birthday and checking the arm band. They will look for clutter, expired packages and any unsafe conditions.

The surveyor will interview the nurse caring for this patientduring the tracer and ask to see, in the chart if all appropriate records are kept. There may be discussion about restraints, use of medication or sedation during a surgical procedure. While tracing a patient the anesthesiologist will be interviewed as will the nurses at admitting and even the people who clean supplies. Every moment of that patients stay is traced and recorded. The patient is often also interviewed about their stay. This process is repeated throughout the survey. The team members are followed closely by senior management and escorted through the building so questions can be answered and charts can be easily retrieved. At each department the group is met by the senior staff of that department.

After each tracer, a report is written by the surveyor. The team meets at lunch and types their reports and shares their finding with each other. They compare notes, express concerns and ask advice of each other. After lunch they are off again to do more of the same.

The second and third morning consists of a brief meeting about the findings the day before. All the organizations leadership meet and listen to what the surveyor found that was good, and that may be a problem but with no hint of the final report.

Each team members has a chance to share their findings and the organizations leadership can ask questions and for clarification.

When sharing with the leadership potential problems, the surveyors do not use names. They are looking for system problems and how the problems can be addressed and approved upon. They are looking for the same problem with each patient, if in fact a problem is found. Is it the individual? Or is it the way things are run there? Often the surveyors have suggestions and will help staff make improvements, but they are not there to give the answers to the staff, they encourage them to come up with their own answers and make it work.

The surveyors can be tough, but they are fair. They know if something is serious and they have no qualms about sharing their concerns. That is, after all what they are there for.

The life safety code specialist spends just one or two days and looks at the roof, the kitchen, the electrical and exit signs. He will ask about the fire drill and how the fire doors work. He will speak to staff about their training and knowledge of emergency situations and protecting the newborns from abduction. He too has an important job and it’s completely related to safety. He gives his presentation at the end of the day and would usually leave before the others.

The final day, senior leadership come to hear what was found to be good, potential problems and anything more serious. At this meeting board members of the facility are often invited.

The report will include RFI’s or Requirements for Improvement. RFI’S can be fixed and improvements made. Too many RFI’s are a potential problem but still each organization is given a chance to fix the RFI’s. Once the surveyors leave, there is now contact with the corporate office of the Joint Commission and that is how contact will continue.

Some final thoughts; The Joint Commission will not fine or discipline the facility. They will give them, when appropriate RFI’s. Too many, depending on the size of the facility can lead to possible loss of accreditation which means loss of funding. In reality, I don’t want to see hospitals lose funding or have their doors closed. I want to see them improve and keep us safe.

Please feel free to comment to this blog.

Sunday, August 10, 2008

At the Top

Who are the people behind the big corporations being sued for injuring and killing hundreds of thousands of people each year? The pharmaceutical companies the healthcare workers, the hospitals? There are people who work in these industries who are truly trying to stop bad outcomes – most of the time.

Though they care, and they try, many of the people at the top are too disconnected from the people who touch the patients to truly understand what is happening every day to the patients. I want to care about the people who work in the industry. I really, really do want to care. Actually, I do care. But I just don’t think they are doing enough.

If the people at the top really wanted to see what is happening to their patients, they would spend time sitting in the lobbies and listening to conversations. They would take off the suit and tie and ask the security guard how to get to a room on the third floor. They would use the bathroom in the lobby of their facility and read the graffiti on the wall, see that there is no soap in the dispensers and see that the toilets are filthy early in the morning.

I went into one hospital bathroom and I swear there was a homeless person living there.

I sat with a representative of a major pharmaceutical company recently and he told me about the changes being made even before the newspaper story hit about a major error. They are still being sued even though the changes were started before this error occurred. I was glad to hear that they were taking patient safety so seriously but why did it take so long. Children die because of packaging errors and the problem gets changed. That’s what we want in patient safety right? But what does that do for the family who lost a child? Can you actually tell me this error never happened before? Or, is this the first time they were caught and forced to speed up the process of change.

A mom dies from an infection and the hospital is going to post the infection rates on their website. Does that bring back the mother to her young son?

We have the data to stop these medical errors and infections from happening. We must stop them from happening.

Sunday, July 27, 2008

Patient Safety Advocating

When the call came in to the PULSE patient safety center that their mother’s bedsores were not healing while in a reputable New York hospital, I knew I was only going to hear one side of the story. But that’s OK. I only need one side to know that someone isn’t satisfied with the care being received. I’m not, after all there to make judgment, I am going to try to help that family become the best patient advocates they can be and maybe, save their mother’s life. I don’t need the “whole” story.

The sisters seemed to being doing everything right by sitting with their aging mom all day. They questioned the care she received and reported back to the other family members what was happening. But after speaking with the patient representative and not being satisfied with their conversation and still not satisfied with the care being received, I was called and asked how I would help.
“I don’t do your advocating for you” I explained. ‘I will help you advocate for your mother”.

First I wrote down the long list of people they already spoke with. The adult daughters shared the conversations. They were told to hire a private duty nurse, there isn’t enough staff and other comments made them uneasy.

I realize not only am I getting one side of the story but there are many pieces that will be left out. I can only start by finding the person this family can speak to and get a straight answer. If their mom will die, they understood now that this is a possibility. They wanted to make sure they did everything possible to help her now infected bedsores that were getting worse, to heal.

I never know if I can help save a life. In most cases, I can’t. It’s often too late.

Being respectful to hospital staff is very important. I know they deal with sick patients. They are experienced at what they do – usually. But I am experienced at being scared and feeling helpless when you know someone may die. I respect the families for trying and doing what they are being told to do by the Institute of Medicine, The Joint Commission and the Agency for Healthcare Research and Quality. They are staying involved.

I call and leave a message for the risk manager while sending notes to people I know who work in healthcare and may have a name for me into that hospital. I want someone who will be sure the family will get the care, treatment and respect they deserve. They have already explained the relationship between themselves and the patient representative didn’t work. They want more. They have a right to ask and receive answers by people they feel are listening and they can trust – whatever that means.

I speak to the risk manager who tells me to send the family to the patient representative who can help. She hears the exasperation in my voice and asks why. Realizing she obviously conveniently did not hear me say the family was not satisfied with that conversation, I decide to look for someone in quality assurance, the medical director or in patient safety. Before hanging up, the risk manager gives me the name of the patient representative to call. I later learn from another conversation that this patient representative no longer works there.

While waiting for calls to be returned, I keep in touch with the family, assuring them I will not divulge the patient’s name. By not offering the patient’s name, the hospital staff can not say to me that HIPAA policies will keep them from speaking to me. We won’t speak about the patient. I only want a place the patient’s family can call and get a person they can trust.

After an entire day of calls, conversations and returning calls, I spoke to someone who committed to stay on top of it. A family meeting was called and the family seemed satisfied that they were heard, and respected. They promised to me that they too will be respectful of the nurses and doctor’s but will call if they think I can help again. I would go there if I need to. I also want to see what is happening first hand.

As I contemplate another day’s work, I have to wonder how our healthcare system is so complicated and the patient’s rights are designed so a sick, injured are unconscious person can’t possibly access them.

Saturday, July 26, 2008

Patient Safety Day 2008

We held our Patient Safety Day program last night at the South Nassau Unitarian Universalist Congregation in Freeport Long Island.

I was thrilled with the turn out. Old friends from years ago returned and new friends were made by people who came to hear the stories and the lessons we have to share. I was happy with the content of the program. Our speakers were powerful and truthful. They told their stories and shared their experiences that changed their life forever so others can learn. I’m sure it was healing and helpful for many to be there. I was so sad to be there.

If only there was another way that we can tell people about patient safety without getting into the details of a death or injury. If only we didn’t need to stand in front of a room full people and cry because of our pain. But, I don’t see that happening soon and I also don’t see the healthcare system doing a great job keeping us safe - yet. Our community education can work, if there was more of it. But we have to be out there doing it. There just isn't a big enough call to learn about patient safety, health literacy and diversity or infection control.

We lit candles and shared stories and said a prayer for those who couldn’t be with us and those names we hold close in our heart.

Leonard told us again about his wife’s death and how he plays mom and dad to his 3 children. His daughter is 9 now and it was her birthday the 24th of July. She is a constant memory of his wife’s death at childbirth from a misplaced epidural.

Mary spoke about her husband who died when a sponge was left inside of him during surgery. The sponge dislodged and killed her husband.

Meryl uses words like torment and murder. Not knowing the details of why her dad died and not ever having a conversation with the hospital, her anger may never change.

There are so many stories. I begin to want to hear them all but I don’t. I want to help them all, but I can’t.

Thursday, July 17, 2008

How Heroes Are Made

I believe no one who has had a bad experience with the healthcare system plans to stand in front of a room and tell about it. They do because they want others to learn from their experience and want to make the healthcare system safer. On July 25, 2008 as we remember the people who have lived with a medical injury, lost a loved one or have had a life-altering experience while trusting the healthcare system, 3 women will tell their story and what their experience has done to change their life.

It’s difficult to imagine that there are so many stories and when no one talks about them, no one learns about them so history will continue to repeat itself. If we don’t start sharing information amongst patients and families, who is protected? No one!

A mental health professional, a physician and a mom who pulled her child out of a Long Island hospital and ultimately saved her daughter’s life will all share their stories. Past what the media will tell us, you will learn their life’s lesson’s and what we can learn from each other that we won’t learn elsewhere.

I hope people will join us at Patient Safety Day on Long Island. Visit here for more information.

Monday, July 14, 2008

Should We Use the Name of the Hospital?

I was recently asked the following question “I wonder why you don't mention the specific hospitals involved in these issues. Wouldn't that put appropriate pressure on them?”

I thought this blog would be an appropriate place to respond since it is a question that I am often asked. The simple answer is, because patient safety is not about one medical facility or medical professional. Patient safety is about the whole healthcare system.

To mention a hospital or doctor that was, or is considered the cause of a patient’s injury or death would be giving false hope to the other people who are still deciding on what doctor or hospital to use. By not using the doctor or hospital mentioned as being involved with a patient’s injury, does not mean an injury won’t happen. We are all at risk, at every facility we choose to use for our healthcare.

Infections are a problem at every facility and a medication overdose can happen anywhere. This is one reason I can’t see more patient safety initiatives being developed until the old ones are used. I also can’t understand why patients and their families are taught about patient safety advocacy on a regular basis to make sure the already available standards and initiatives are followed.

So, I don’t discount the people or the media who use the name of the facility where there was an injury, I just think the problem is bigger than that one story.

Sunday, July 13, 2008

Safe Surgery Saves Lives

Safe Surgery Saves Lives is a check list introduced by the World Health Organization (WHO), which partnered with the World Alliance for Patient Safety (WAPS) to develop the “Safe Surgery Saves Lives” initiative. See You Tube Video here. This checklist is for surgical teams to improve surgical safety, reduce medical errors and reduce death during surgery around the world.

Although my personal, nor business budget would have allowed me to participate in the event in Washington DC to introduce this new initiative, I can’t say that I am disappointed that I couldn’t attend. Don’t get me wrong, I am deeply in support of anything that makes health care safer, but something about this bothers me. Maybe someone will comment and help me understand this better.

This new initiative means healthcare workers are given more suggestions for making surgery safer. Not considered regulation, but instead tools to work with. This, on top of the many, many regulations, standards and policies just seems like another way that the already well funded people in medicine are getting more funding to put together more initiatives to overlap the already non-working initiatives.

Do I sound annoyed? Probably. If this is not regulation, than why have it? Regulations are often not followed anyway or we wouldn’t be in this mess already. We have plenty of initiatives already like SCIP. I’m still struggling to figure out why doctors (at least many who I and my associates have used) still don’t wash their hands!

The Joint Commission has fine patient safety standards that can be followed which include marking the site of surgery and checking who the patient is before the surgeon cuts them open. Yet there are still too many reports of “wrong” surgical procedures. About ten every month are reported to The Joint Commission.

Healthcare organizations don’t even need to be accredited by the Joint Commission to practice the JC standards. They just need to do it. I’m not trying to be negative, again, I am always happy about new ideas that can make patient care safer, but something about the hoopla that goes with this just doesn’t seem to fit. I can’t get excited anymore.

Wednesday, July 9, 2008

Is it Really the Pharmaceutical Company?

I just read a cute cartoon about doctors prescribing medication to their patients and taking gifts from the pharmaceutical industry. The cartoon was labeled The Hippocrates Oath. I have to wonder whose responsibility it is to take the medication or do the research about the medication the doctor prescribes.

Years ago I may have medicated my son if I didn’t test him myself that his behavior seemed to be based on the amount of sugar he consumed. He was born sick and premature and had a nurse caring for him the first 3 years of his life. She helped monitor his food. I’m not sure that I would have been able to do that myself if I had to. It was time consuming and a lot of extra work. But, he was worth it and he never took any mind altering drugs even though he had bad tempers and behavioral problems. Now, he is a wonderfully well adjusted (so far) teenager.

I can’t say the same for myself. It is easier to take a pill to lower my blood pressure than to exercise. Although, in the last few months I have really thought about getting off my medication, I still make the choice to take pills each day. Many of us know what we have to do to, we just don’t do it. We don’t even ask the doctor about alternatives to the medication.

So, I’m not sure I can blame the pharmaceutical company for the medication I take. We may have to look deeper at ourselves, in many cases.

Monday, July 7, 2008

Woman Dies

The video of a woman dying on the floor of a New York hospital has caused an uproar with many patient safety advocates. The fact that it was filmed, made it fairly simple to figure out what happened. The hours leading up to her death, the death itself and what happened following her death were all on film.

What wasn't filmed, is what the thought process was that led a security guard to ignore this woman and other staff to allow this woman to die alone on the floor of the emergency room just feet away from qualified staff to help her. Until we know what people are thinking at the time, as well as what actually happened, we will not understand or solve the patient safety problem in this country.

Tuesday, July 1, 2008

Letter from a Doctor

I just received a letter back from the doctor who didn't wash his hands.

He wrote in his letter; "I certainly agree with you that hand washing is an important rule to infection control. Health care professionals should certainly wash their hands or use some type of disinfectant gel after completing a patient encounter. Sometimes I will perform one of these methods of hand hygiene immediately after examining the patient while other times I will walk to an adjacent room and perform hand hygiene. On other occasions I may enter am examination room and perform hand hygiene prior to the exam".

I now understand the different methods this doctor uses to perform hand hygiene. He has educated me and explained the procedure he uses. But his thoughtfulness is how he ended the short note:

"As a result of your letter, I believe I will have an even greater appreciation for the importance of hand hygiene in both the office and the hospital setting."

I'm not sure if I would use him again but I surely would like to shake his hand. There's nothing wrong with stopping infections one person at a time. We have to start someplace.